This list goes A-Z and includes national charities, groups and service providers that you may find useful. If you know of any charities that aren’t listed here that you think everyone should know about, please let us know on firstname.lastname@example.org
AbilityNet is a national charity helping disabled adults and children use computers and the internet by adapting and adjusting their technology
ADDISS is the The National Attention Deficit Disorder Information and Support Service. It provides people-friendly information and resources about Attention Deficit Hyperactivity Disorder to anyone who needs assistance – parents, sufferers, teachers or health professionals.
Advisory Centre for Education (ACE) is an organisation that provides information, support and advice to families when there are problems with education
Action for Kids is a national charity working with disabled children and young people, to promote work towards independence
ASBAH is the association for spina bifida and hydrocephalus
ASD Friendly is a community of parents and carers of people with Autism and Asperger’s Syndrome. Established in April 2003, ASD Friendly brings them together to share tips, vent frustrations and generally have a laugh about things. Site with forums etc.
Brittle Bone Society provides help and advice for people with the bone condition Osteogenesis Imperfecta (OI)
ASD Friendly is a UK web-based community of parents helping parents of children with ASD
Carers UK provides information, advice and support for carers. By bringing carers together, they provide a stronger voice which shapes campaigns to make life better for carers and influences policy makers. Carers UK provides an advice line on 0808 808 7777
Cerebra is a charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers.
The CHARGE Family Support group is the UK’s registered charity for people with CHARGE Syndrome and their families.
Children’s Heart Federation is committed to assisting children with congenital or acquired heart disease in the UK
Contact-a-family is a national charity for families of disabled children, offering help, advice and peer support
Cystic Fibrosis Trust funds research into the disease and provides information and support for patients and families
Deaf Children’s Society is a national charity that supports deaf and hearing impaired children and their families
Dogs for the disabled provide trained dogs to help people with disabilities (other that registered blind or deaf)
Down’s Syndrome Association helps people living with Downs to lead full and rewarding lives
Dyslexia Action is a national charity supporting people affected by Dyslexia and literacy difficulties.
Every Disabled Child Matters is a campaign for the rights of disabled children supported by four leading organisations working to support disabled children and their families
The FASD Trust is a charity that provides information, networking and support for families / carers of children with Foetal Alcohol Spectrum Disorders.
Fledglings is a national charity that finds and sells products that improve the lives of disabled children and their families
Hope Support Services support young people aged 11-25 when a close family member is diagnosed with a life threatening illness
http://hypermobility.org/ for more information on hypermobility, what it is and places to go to find out more, please follow this link.
Image in Action believes that people with disabilities have a right to information and understanding about sexuality. For over 25 years they have been putting that belief into action, developing effective methods and creating new ways of making complex issues safe and accessible. They are acknowledged as leaders in the field of Sex and Relationships Education (SRE) for people with learning disabilities.
KIDS works directly with disabled children and their families to provide holiday camps, activities and trips out
KithandKids provides activities, opportunities, information and support for people with a learning disability or autism.
National Autistic Society is the leading UK charity for people with autism and their families
Makaton Charity is a national charity helping families learn makaton (sign language) to help their children learn another way of communicating.
MaxAppeal is a UK charity supporting families affected by DiGeorge Syndrome, Velocardiofacial Syndrome and 22q11.2 deletion
Mencap is the leading UK charity for children and adults with learning difficulties
Mind is the leading mental health charity for England and Wales
Motability is a national charity that provides cars (adapted where necessary), wheelchairs and motorised scooters for disabled children and adults who are in receipt of the higher rate mobility component of the Disability Living Allowance
Netbuddy is a website for swapping practical tips and information on all aspects of supporting people with learning disabilities
PreparingforAdulthood is a charity with a new approach to special educational needs and disability’ green paper.
Rett UK is a national charity that supports families affected by Rett Syndrome, which is a severe, life-long neurological disorder
RNIB is the national charity for blind and partially sighted people
Scope is the leading UK charity for children and adults with cerebral palsy and now supports general disability also
Sense is the leading national charity for children and adults who are deafblind
Shaw Trust is a national charity that works with employers, social services and disabled people to help get disabled people in to work
Sibs is an organisation for brothers and sisters of disabled children and adults. Siblings have specific needs that require attention at different stages of their lives, including relief of isolation, information, and strategies for coping with the situations they find themselves in.
Snap Childcare is a business providing nannies/ carers for your disabled children
The Childrens Sleep Charity is a national charity working to ensure children get a good nights sleep… and so do their parents!
UKAP is the UK ADHD partnership, which recognises ADHD as a complex but treatable condition which can have a profound impact on individuals, families and society
Unique is a UK-based charity that supports families affected by rare chromosome disorders
Whizz Kids concentrates on helping physically disabled children lead more independent lives
Young Minds is a charity that is committed to improving the emotional wellbeing and mental health of children and young people.
3hFund is a charity which makes it possible for disabled people (children and adults) to have a memorable holiday and give their carer a break. It can also help families of a disabled dependant to have a modest holiday in the UK.